Do I need a MyValues Profile?
A MyValues Profile is important for everyone and can be completed at any time in your life; it isn't just for when you are sick or nearing the end of your life.
What is involved in creating a MyValues Profile?
After registering with MyValues you will be shown 60 statements one-by-one and asked to select your level of agreement with each statement, on a 5-level scale from 'strongly disagree' to 'strongly agree'. Some statements may cover the same ground as earlier ones but are asked differently. This is intentional to find out how strongly and firmly you feel about the issues. Once you have responded to all statements, the system will instantly analyse your answers to create your profile.
Is it OK to be unsure about some of the statements?
The statements examine many different values, some of which may not be things that are important for you personally and that you don't have strong feelings about.
Where you are uncertain about a particular point it is entirely appropriate and reasonable to respond that you are 'unsure'. Many people, especially those who are younger and fitter, are unsure about a lot of the things that are raised in MyValues.
It is unusual for anyone to be certain about everything, indeed such people can be rather unimaginative and rigid. A degree of uncertainty is expected and needs to be accepted.
What if some of my responses contradict each other?
Human decision making is not entirely logical, it is perfectly possible (and common) to agree with two quite contradictory opinions at the same time. Variability commonly occurs when the issue concerns something that has not been previously worked out or is not felt to be personally important.
Where variable views are expressed it is probable that the actual opinion is somewhere in between the two extremes and may vary with circumstances. As variable answers do not convey clear opinions these views are not reflected in the MyValues report.
While some degree of variability is quite usual and is to be expected, a high degree of variability suggests that answers might be random or not considered.
How long does it take to create a MyValues Profile?
Most people already know quite clearly how they feel and can respond to most of the statements without much hesitation, so the whole process should take less than 30 minutes to complete.
Do I have to complete a MyValues Profile in one sitting?
To enable a MyValues Profile to be created all the statements need to be responded to, but not necessarily all at once. If you get interrupted, or feel you need some more time to think about things, you can save your partially completed profile and come back to it another time.
What happens once I've completed a MyValues Profile?
Once you have responded to all the statements the results are analysed and the MyValues Profile is date stamped and registered online. We encourage you to share your Profile by creating a MyValues Report that you can print or email. Should the day come when you are incapable of expressing your wishes regarding your ongoing treatment and care a MyValues Report is there to be your voice.
Can I change my responses to the MyValues Profile statements?
You can change your responses and update your MyValues Profile at any time. Each time you update your profile a new MyValues Report can be generated. It is important to provide family and medical professionals with these new or updated reports.
With or without a MyValues Report can I refuse medical treatment?
Yes, you have the right to refuse all medical treatment or request some forms of treatment not be undertaken.
When should I consider completing a MyValues Profile?
With MyValues it is better to do one now rather than later, and you can easily create a new report at any time as your values change.
What is in a MyValues Report?
A MyValues Report displays your strongly and moderately held views; a variability factor, reflecting the likelihood that the views in the report are a reliable reflection of those you hold; and a uncertainty factor, reflecting the degree of confidence with which they are likely to be held. Finally, an overview of your attitude towards medical intervention and whether you prefer to make decisions for yourself or with doctors and/or family is provided. Any additional comments are included at the end of the report.
What is the difference between a MyValues Profile and a MyValues Report?
A MyValues Profile is the term we use for your stored responses to the 60 statements and the analysis of these responses. A MyValues Report is the document you can share via print or email in order for your wishes to be understood and respected.
Who do I talk to about MyValues?
It is recommended that you discuss your feelings, values and wishes with close friends and family so they are able to understand your thought process and respect your values regarding life saving and life prolonging medical treatment.
Not all family members will necessarily agree with your wishes, but others will be happy that you have taken responsibility for your care and taken the onus off them to make such important and personal decisions.
Information about medical treatments that you may require in the future can be sought from your doctor or other health care professional; they are there to help you create an informed and considered MyValues Profile.
Who can see a MyValues Profile?
The MyValues Profile can only be shared via a MyValues Report selected via the online 'share' function available once you have completed your Profile. Each MyValues Report has a unique key number that you can give to those people you wish to view your report.
How can a MyValues Report be used?
The results contained in your MyValues Report can be used to make medical decisions for you if you don't have the capacity to decide or communicate decisions for yourself. You can also appoint a substitute decision maker, usually a friend or family member, who can assist in carrying out your wishes.
How does MyValues fit with other Advance Care Planning?
MyValues provides validated information about personal values that informs decision making. It is advance care planning in its own right and supplements any other advance care plans that may be available (such as instruction relating to specific treatments that may be rejected or requested).
What role does a MyValues Report have in an emergency?
If your MyValues Report is immediately available, medical treatment decisions will be made by reviewing this information and discussing your wishes and treatment options with family members and your substitute decision maker (if you have appointed one).
If your MyValues Report is not available then life-prolonging treatment may be undertaken until it can be obtained, and the matter discussed with your family and/or substitute decision maker. If it becomes clear that you have indicated that you do not desire such treatment, then it can be stopped.
Is a MyValues Report legally binding?
A MyValues Report is a personal document that, once lodged, becomes something that your family and medical staff should take into account when treating you in the event that you are incapable of communicating your wishes. Medical professionals are not legally bound to act in accordance with your MyValues Report, but acting prudently, could be expected to comply with the expressed wishes. The report can be overridden by you at any time, verbally, in writing or by revising it.